Sickle Cell Disease Centers Workshop

Sickle Cell Disease Centers Workshop

2023

May 8-11
Washington, DC

Which Cohort Am I In?

If this is the first year your program has participated in this workshop, then you are in the “First Year Cohort

If your program participated in the 2022 ASH Sickle Cell Disease Centers Workshop, then you are in the “Second Year Cohort

 

 Confirm your cohort under the Attendee tab at the top of the page

Workshop Downloads

Slides, PDFs and Word Docs from the May 9-11 Meeting in Washington, DC
Password: 2023SCD

Patient Videos

Thank you to our patient participants!

Agenda

08 May

Dinner and Introductions

6:00 PM - 8:00 PM Fairmont Colonnade Room
09 May

Breakfast

7:30 AM - 8:30 AM Kennedy Foyer
Sophie Lanzkron, MD Sophie Lanzkron, MD

Welcome

8:30 AM - 9:00 AM Kennedy Ballroom

Other Speakers

Julie Kanter, MD
Payal Desai, MD
Wally R. Smith, MD

Practice Your Pitch

9:00 AM - 10:00 AM Kenedy Ballroom

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Break

10:00 AM - 10:30 AM
Modupe Idowu, MD Modupe Idowu, MD

Understanding Your Patient Population and Patterns of Utilization

10:30 AM - 11:15 AM Kenedy Ballroom

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Stephanie Guarino, MD Stephanie Guarino, MD

Start-up and Challenges

11:15 AM - 12:00 PM Kennedy Ballroom

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Lunch

12:00 PM - 1:00 PM Roosevelt Room

Review SWOTs and Gathering Data Worksheet

1:00 PM - 3:00 PM Breakout Rooms - TBD

Break

3:00 PM - 3:30 PM Kennedy Foyer
Julie Kanter, MD Julie Kanter, MD

Alternative Models for Delivery of Care

3:30 PM - 4:00 PM Kennedy Ballroom

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Shirley Johnson, BA, LSW Shirley Johnson, BA, LSW

Best Practice for Case Management and Coordination of Care

4:00 PM - 4:30 PM Kennedy Ballroom

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Nick Boshell, RN, BSN Nick Boshell, RN, BSN

Critical Role of the Nurse

4:30 PM - 5:00 PM Kennedy Ballroom

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Dinner

6:30 PM - 9:00 PM Fairmont Colonnade Room
10 May

Breakfast

7:30 AM - 8:30 AM Kennedy Foyer
Wally R. Smith, MD Wally R. Smith, MD

Creating a Comprehensive, Institution-Wide Approach to Pain

8:30 AM - 9:15 AM Kennedy Room

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Matt Lyon, MD Matt Lyon, MD

Options for Acute Care Management

9:15 AM - 10:00 AM Kennedy Ballroom

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Download PDF

Download PDF

Other Speakers

Patricia Kavanagh, MD
Wally R. Smith, MD Wally R. Smith, MD

Question and Answer

10:00 AM - 10:30 AM Kennedy Ballroom

Break

10:30 AM - 11:00 AM Kennedy Foyer

Building Trust Activity

11:00 AM - 12:00 PM Breakout Rooms - TBD

Lunch

12:00 PM - 1:00 PM Roosevelt Room
Lori E. Crosby, PsyD Lori E. Crosby, PsyD

Addressing Institutional Bias and Racism

1:00 PM - 3:30 PM Kennedy Ballroom

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Other Speakers

Melissa Creary, PhD, MPH

Break

3:30 PM - 4:00 PM Kennedy Foyer
C. Patrick Carroll, MD C. Patrick Carroll, MD

The "High Use" Patient

4:00 PM - 5:30 PM Kennedy Ballroom

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Resource Fair and Dinner

6:30 PM - 9:00 PM Fairmont Colonnade Room
11 May

Breakfast

7:30 AM - 8:30 AM Kennedy Foyer
Sophie Lanzkron, MD Sophie Lanzkron, MD

Building Relationships with the Local Community

8:30 AM - 9:15 AM Kennedy Ballroom

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Other Speakers

Derek Robertson, MBA, JD, CHC
Julie Kanter, MD Julie Kanter, MD

Forms of Recognition

9:15 AM - 10:00 AM Kennedy Ballroom

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Break

10:00 AM - 10:30 AM Kennedy Foyer

Meet the Experts

10:30 AM - 12:00 PM TBD

Lunch

12:00 PM - 1:00 PM TBD

Meet the Experts

1:00 PM - 2:00 PM TBD
Payal Desai, MD Payal Desai, MD

Highlights of Previous Years

2:00 PM - 3:00 PM Kennedy Ballroom

Download Slides

Download Slides

Other Speakers

Stephanie Guarino, MD
Andrew O’Brien, MD

Adjourn

3:00 PM - 3:00 PM
08 May

Dinner and Introductions

6:00 PM - 8:00 PM Fairmont Colonnade Room
09 May

Breakfast

7:30 AM - 8:30 AM Kennedy Foyer
Sophie Lanzkron, MD Sophie Lanzkron, MD

Welcome

8:30 AM - 9:00 AM Kennedy Ballroom

Other Speakers

Julie Kanter, MD
Payal Desai, MD
Wally R. Smith, MD

Practice Your Pitch

9:00 AM - 10:00 AM Kenedy Ballroom

Download Slides

Break

10:00 AM - 10:30 AM

Group Discussions: Updates From Each Center

10:30 AM - 12:00 PM Breakout Rooms - TBD

Lunch

12:00 PM - 1:00 PM Roosevelt Room
Alfred Dunn, MBA Alfred Dunn, MBA

Developing a Business Plan

1:00 PM - 1:30 PM Kennedy Ballroom

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Janis E. Bozzo, MSN, RN Janis E. Bozzo, MSN, RN

Developing Data to Show Value

1:30 PM - 2:00 PM Kennedy Ballroom

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Kenneth Rivlin, MD, PhD Kenneth Rivlin, MD, PhD

Quality Improvement

2:00 PM - 2:30 PM Kennedy Ballroom

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Download PDF

Download Slides

Panel discussion/Q&A

2:30 PM - 3:00 PM Kennedy Ballroom

Break

3:00 PM - 3:30 PM Kennedy Foyer

Breakout Session

3:30 PM - 5:30 PM Breakout Rooms - TBD

Dinner

6:30 PM - 9:00 PM Fairmont Colonnade Room
10 May

Breakfast

7:30 AM - 8:30 AM Kennedy Foyer

Building Trust

8:30 AM - 10:30 AM Breakout Rooms - TBD

Break

10:30 AM - 11:00 AM Kennedy Foyer
India Sisler, MD India Sisler, MD

Building a Transition Program

11:00 AM - 12:00 PM Kennedy Ballroom

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Other Speakers

Wally R. Smith, MD
Shirley Johnson, BA, LSW

Lunch

12:00 PM - 1:00 PM Roosevelt Room
Lori E. Crosby, PsyD Lori E. Crosby, PsyD

Addressing Institutional Bias and Racism

1:00 PM - 3:30 PM Kennedy Ballroom

Download Slides

Other Speakers

Melissa Creary, PhD, MPH

Break

3:30 PM - 4:00 PM Kennedy Foyer

Breakout Session/SWOT Review

4:00 PM - 5:30 PM Breakout Rooms - TBD

Resource Fair and Dinner

6:30 PM - 9:00 PM Fairmont Colonnade Room
11 May

Breakfast

7:30 AM - 8:30 AM Kennedy Ballroom
Sophie Lanzkron, MD Sophie Lanzkron, MD

Building Relationships with the Local Community

8:30 AM - 9:15 AM Kennedy Ballroom

Download PDF

Other Speakers

Derek Robertson, MBA, JD, CHC
Julie Kanter, MD Julie Kanter, MD

Forms of Recognition

9:15 AM - 10:00 AM Kennedy Ballroom

Download Slides

Break

10:00 AM - 10:30 AM Kennedy Foyer

Meet the Experts

10:30 AM - 12:00 PM TBD

Lunch

12:00 PM - 1:00 PM TBD

Meet the Experts

1:00 PM - 2:00 PM TBD
Payal Desai, MD Payal Desai, MD

Highlights of Previous Years

2:00 PM - 3:00 PM Kennedy Ballroom

Download Slides

Download Slides

Other Speakers

Stephanie Guarino, MD
Andrew O’Brien, MD

Adjourn

3:00 PM - 3:00 PM

 

 

Downloads

12:00 pm – 12: 15 pm

Welcome and faculty introductions

 

12:15 pm—1:00 pm

Unmet Need in SCD: SCD Centers

Sophie Lanzkron, MD

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1:00 pm—1:45 pm

Building Engagement and Buy-In

Julie Kanter, MD

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1:45 pm—2:30 pm

 

Breakout groups

 

 

2:30 pm—2:40 pm

Break

 

2:40pm—3:20 pm

Using Data to Show Value

Janis Bozzo

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3:20 pm —3:40 pm

 

Gathering Data in large group

Payal Desai

Data Gathering Worksheet (PDF)

Clinical Code List for SCD (XLSX)

3:40—4:00 PM

 

Setting Goals for the Workshop

Payal Desai

Wally Smith

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